My GF said this might be a good place to talk about this stuff, so here i go.
resently my moms developed dementia and the place she was living at would not take her back after dumping her at the local hospital. i was able to find a "Ladys Home" for her in SF. my problem now is that they sent me a letter giving me thirty days to move her because she's not taking her meds or a shower at least three times a week. i have no F*%k'n idea what to do. after talking to these people today they will give me a little more time if i can get my mom to "comply". any ideas?
right now i'm so F%*k'n mad at her and my brother(who will have nothing to do w/her) that i'd like to take a baseball bat to both of them. all i'm trying to do is the right thing, but i'm rejected at every turn. if its not mom, it my bro. whats wrong with familys today?
my GF is the one person whos helped through this, but some times i wish she didn't have to see this stuff, she doesn't deserve it.
i never thought about this stuff growing up, i had not idea how much it would hurt, i feel like its kill'n me.
thanks for letting me rant!!!!
peace,
R
resently my moms developed dementia and the place she was living at would not take her back after dumping her at the local hospital. i was able to find a "Ladys Home" for her in SF. my problem now is that they sent me a letter giving me thirty days to move her because she's not taking her meds or a shower at least three times a week. i have no F*%k'n idea what to do. after talking to these people today they will give me a little more time if i can get my mom to "comply". any ideas?
right now i'm so F%*k'n mad at her and my brother(who will have nothing to do w/her) that i'd like to take a baseball bat to both of them. all i'm trying to do is the right thing, but i'm rejected at every turn. if its not mom, it my bro. whats wrong with familys today?
my GF is the one person whos helped through this, but some times i wish she didn't have to see this stuff, she doesn't deserve it.
i never thought about this stuff growing up, i had not idea how much it would hurt, i feel like its kill'n me.
thanks for letting me rant!!!!
peace,
R
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Re: Becoming my parents to my parent
Tue, May 3, 2005 - 6:04 PMYou've got a problem that isn't going to be easy to solve Richard. I quit my job to homecare my mother. It did it 24/7 for over four years. I watched as her mental and physical capacities diminished slowly day-by-day. I had help from my wife in bathing her and cleaning up after she soiled herself. I laid half awake every night hoping she wouldn't try to get up in the middle of the night to try to walk to the bathroom, because she was prone to falling.
I'm not going to go into detail about the verbal abuse she hurled on me after the dementia got worse. I took on the responsibility so she wouldn't have to go to a nursing facility until absolutely necessary.
I understand your frustration and anger with your mother and brother. Since you obviously have taken on the responsibility of trying to do the right thing for your mother, I suggest you check out facilities near you that specialize in the care of Alzheimers and dementia patients. California must have state agencies that can help you decide on options that best meet yours and your mother's needs.
You didn't mention your mother's financial situation. In the state of Washington, if she is admitted to an approved facility, she will have to pay for the care she receives until all of her financial resources are depleted down to a maximum amount she is allowed to keep. She'll only be able to keep a very small amount of money, plus a minimum allowance from her Social Security. Find out how California handles this. If you have the money, you should probably consult a lawyer about your mother's rights and responsibilities under the law.
My mother died peacefully in her sleep in a very nice nursing facility a week short of her 89th birthday only a few months after we finally admitted that we could no longer homecare her.
I hope you can overcome your anger with your mom (and brother). It's not her fault, and it's not yours either. She needs your love, but she should have professional care and you need to live your life without guilt. There's help out there. You need to go to your phone book or on line and find it.
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Re: Becoming my parents to my parent
Tue, May 3, 2005 - 8:45 PMI've always heard it said, first we raise our children, then we raise our parents. I went through 8 months of hell as my father died from brain cancer.
I guess in a way I was lucky being the "Wild Child" in the family. Born in '57 missed the VN draft by 10 months.
At first I was very insulted that I wasn't selected to be the Trustee of my Father's estate, being the oldest son and all. I was left out of every decision, because my two siblings felt I was incapable because of my history of drug abuse (Partying). Hell it was 1970...
It sucked, it all sucks. I've been sober for 20 years, yet I'm still the outcast. My mother informed me recently that my adopted sister is going to be her trustee. Damn insulting. So I'm not going out of my way to let her see my children, who she's ignored for their whole lives.
Don't really know what I'll do when she starts to lose it. Probably just do the right thing and show up at her funeral. Maybe come back a week later and..*&^%$#@#$%^&*
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Re: Becoming my parents to my parent
Wed, May 4, 2005 - 6:57 AMMy mother is slowly "losing it" (mentally and physically). She is okay to be by herself during the day for the time being. She has stopped driving by her own choice, mostly due to failing eyesight. I've been told that Alzheimer's isn't hereditary, yet my Mom's father and sister both had it before they died. . . pretty scary for me.
My older sister (divorced with children moved away) has moved in with her. She is a registered nurse, still working full time at a hospital.
They have made legal arrangements so that my sister agrees to take care of mom at home, in return she will inherit the house.
This was very agreeable to all of us (5 siblings). We are all going to try to take turns helping out( some of us live farther away), but to have a live-in nurse who is also a daughter, is a win-win situation for us all.
I'm so sorry for those of you going through this tough time, I wish you the best.
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Re: Becoming my parents to my parent
Wed, May 4, 2005 - 2:04 PMThis is a difficult situation but you should be able to get some help from the state. I'm not very familiar with California's system but you can try starting at this web page: www.aging.state.ca.us/
Even if your mom has her own financial resources, the state should help you find appropriate supports and services. You might want to look into guardianship or conservatorship if you haven't already. And try to not be cajoled into accepting financial responsibility for anything.
Good luck!
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Re: Becoming my parents to my parent
Sat, May 7, 2005 - 8:46 AMRichard,
If your Mom lives in the city of SF and she's Medicare and Medi-Cal eligible, you should really look into On Lok Senior Health Services (www.onlok.org/seniorhealth/index.asp). I know many think it's a program for the Chinese because of the name but it isn't. It serves all different ethnic groups of seniors in SF. About 70% of their senior population has some form of dementia. It is a PACE program (Program for All Inclusive Care for the Elderly) and On Lok was the first PACE program in the country. Now there are over 40 PACE programs across the country. PACE programs will provide medical, rehab, vision, dental, meals as necessary and transportation. Call 888-88-ONLOK.
Best of luck to you. I know how hard it is as I'm trying to take care of my Mom from a distance. She lives in S.Cal and I live in Oakland so it's a challenge.
Amy -
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Re: Becoming my parents to my parent
Sun, May 8, 2005 - 9:05 AMthanks for your stories and support. theres so many details that have to be worked out, like packing up her apartment and trying to figure out what to save and what to throw out. there must of been an inch of papers covering most of her living room floor, after sorting through it we must of thrown away 5 grocery bags full of papers. i didn't save anything older then 2000.
a lot of the paper work had to do with old medical papers and bills, some where in collection. i'm thinking of filing bankruptcy for her. has anybody done this for a parent and how did it go? her only income is from SS and it's not much. another thing i found out about was that since mom 'n dad where married for more that 10 years that she may be entitled to get the same benifits as he, but i didn't know where he lives or his SS#. any ideas on track'n him down?
i've been takling w/ my brother and i'm hoping he'll share the extra cost of mom's care. he hasn't commited, but at least he's think'n about it.
Thanks again for the support,
Richard
BTW- Amy, I've heard of On Lok and i'll check it out. -
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Re: Becoming my parents to my parent
Sun, May 8, 2005 - 10:01 AMGoogle or another good search engine is as good a way as any to begin a people search--may not get you far, but it can give you a surprisingly good start.
You don't mention anything about support beyond your gf. Have you looked for Alzheimer caregiver support groups?
I worked very briefly as a hospice chaplain, and I learned from that that it is impossible to carry this kind of thing on your shoulders alone and keep your health and sanity. Everything you describe going through is normal and is inherently traumatic. And other people do know *exactly* what you're going through. At the point you're at, if you really have only one support person for yourself, even finding one other who understands would be *doubling* your support system and can make a huge difference for you.
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Re: Becoming my parents to my parent
Wed, May 18, 2005 - 7:55 AMMy 3 "married" brothers feel that I SHOULD take care of our mother because I am divorced, not "involved" and the kicker---female.........no way in Hell
AMber -
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Re: Becoming my parents to my parent
Wed, May 18, 2005 - 10:01 AMHi again,
That totally sucks Amber, i don't get any support from my brother. he doesn't even call to ask how i'm doing with mom. i mean how f*%k'n hard is it to pick up the phone. OK, enough 'bout that.
I went to a support group last night, it was OK. I was the only man there. there was the facilitator and two other wemen. these ladys have the support of there family and sibling, more power to them, but i was hoping to find peeps in the same situation as i'm in. in spite of that it was nice to talk to people that are dealing with simalur. i done want to wear out my welcome with my friends when they ask, "Howz it going?" it's a loaded question with me right now. some times i'll say things are fine, other times thier in for a ear full and i can see they regret ask'n the question.
as to the kicker, you being female. thats total BS on your brothers part. she's there mom to and should give you total support, but if there anything like my bro don't hold your breath. what is it about son's that don't think they have to help take care of thier parents if they have a sisters, such a cop-out.
On to other things, I got a call from the home my mom's in now and they've give me a 30 day notice to move mom because they can't deal with her. this is a place that is suppose to deal with alzheimer's/dementia. granted mom's gone out of her way to be a pain in the ass, these people have to be told what to do. i asked at last nights group, do i have to do there job for them? answer,YES. and that goes for the doctor too.
IE. at the stanford hospital, they perscribed 2 alzheimers drug that made her feel lousy and she was refusing to take them. after checking with the home i was told she had to take her drugs or she was concidered to be non-complient. i found out that nobody followed through to see how these drugs where effecting her. i mean, if the drug make her feel so bad she doesn't want to take it, is it doing any good? i don't think so and i'm not a doctor. and thats only the tip of this iceburg.
Amber, tell your brothers they need to help you out, after all she's thier mother too.
enough for now, thanks for the support ya all! this rant is now over! -
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Re: Becoming my parents to my parent
Wed, May 18, 2005 - 4:37 PMHeres a question for ya all, talked with mom today. she said she wants to go back to Palo Alto to live, OK. i didn't think this will work, but she wants me to drop her at the train station. she'll go to PA and return to the ladies home at night. she'll talk to friends and place an ad in the local paper to find a new place. what should i do? let her go and hope she makes it back? i don't know who to be pissed at, her or the system thats got her where she's at. F*%K this situation sucks!!!!!!!!!!!!!!!
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